Patient Support Groups
To meet the needs of patients with non-small cell lung cancer (NSCLC) with an oncogene driver, patients have organised into support groups. These groups are building partnerships to provide support and education and to help patients access treatment through sharing information and promoting advocacy.
These patient support groups represent powerful resources to enable enhanced public and patient engagement and meaningful alliances with key stakeholders to help deliver improvement in outcomes for patients
Nearly 80% of respondents said that they were more informed and better prepared
71% of respondents were inspired by other members' stories
click HERE to read the full report on the results of a patients' survey
Why you should join a support group - video
The Alliance's first project has been to produce a credit card-sized folded card for lung cancer nurses and hospital pharmacists to give to patients. The card directs patients with an oncogene-driven lung cancer to their relevant support group. Please use the contact form on the Home page if you are a HCP and would like a supply of these cards.