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Welcome to the
Oncogene-Driven Lung Cancer

Patient Alliance UK

The Alliance comprises UK patient-focused support groups for lung cancer patients with an actionable mutation.

The purposes of the Alliance are to:

  • share best practice

  • optimise resources

  • carry out joint collaborations

  • support the formation of patient support groups for all actionable mutations

  • and much more - see below

Read more about the formation of ODLC Patient Alliance in our press release.


Email us for further information about the Alliance or to order the Support Groups Information card.

If you are a patient who has been diagnosed with EGFR-positive, ALK-positive or ROS1-positive lung cancer, click on one of the logos below to go to the relevant support group's website

The current members of the Alliance are:



About 20% of non-small cell lung cancer (NSCLC) cases will have one of the mutations covered by these three organisations.

Honorary Clinical Advisor

Dr Alastair Greystoke

Consultant Medical Oncologist

Northern Centre for Cancer Care, Newcastle

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Our Vision

That every healthcare provider, when presented with a patient of any age or of any smoking status who is experiencing a persistent cough or other relevant symptoms, will consider the possibility of a diagnosis of lung cancer and will order appropiate investigation.

That all lung cancer patients with actionable mutations receive speedy diagnosis and the best care possible wherever they live in the UK.

That patient-focused support groups are available for all lung cancer patients with actionable mutations.

What we do


provide an alliance of charities and other organisations that provide support to lung cancer patients with actionable mutations

represent such charities and organisations when matters of common interest are being discussed

support the formation of patient-focused support groups for all actionable mutations

promote the early diagnosis of lung cancer in non-smokers

liaise with other relevant organisations

share best practice

share facilities

optimise resources

carry out joint projects

co-ordinate events/activities

seek funds to develop these purposes.

Contact Us

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